Under Construction

It will take me a while to edit, convert, and publish chapters onto this new site.  Parts I & II should be up by the end of February 2010.  Chapters involving my relapse and transplant will be added later.  – Dennis W. Pyritz, RN, BA, BSN

Comments

Comment from Deborah Lopresti
Time April 27, 2010 at 12:26 am

My husband finished treatment for T-PLL before Easter. He was treated with Campath for a period of 13 weeks and his bloodwork has been looking great for almost two months now. We are supposed to have our next appointment with his oncologist on May 17 but on April 23rd he started with a fever. The fever has been going up and down for 4 days now and we have an appointment with the oncologist tomorrow. I am petrified that something is horribly wrong. Your journals are inspiring. I thank you for them. This cancer is so rare and I am so afraid.

Comment from claire peterson
Time June 9, 2010 at 7:20 pm

Hi Deborah, my husband and best friend was diagnoised on March 22 with t-cell Prolymphocytic leukemia. Like youself, I’m terrified. He is presently doing well with the Campath without reactions, but that’s today, I’m afraid of tomorow. I’ll keep you with my daily prayers.

Comment from Ingrid
Time October 31, 2011 at 5:45 am

My Dad has just finished his Campath treatment this week and having read your wonderful (and very helpful) blog at the beginning of his treatment, I was wondering if you are hoping to publish the chapters on relapse and transplant? Thank you for taking the time during such a difficult situation, to write so honestly and in such a helpful way for those who are following in your and your family’s footsteps.

Comment from admin
Time December 1, 2011 at 2:49 pm

Sorry for the late reply. I haven’t been checking this site very often. Please feel free to contact me if you have any questions or concerns. beingcancer@att.net or 317-283-1989

Comment from Sandra Cantwell
Time May 30, 2012 at 5:10 am

My 44 year old sister was admitted to the hospital on December 10, 2011 because of a cough that she could not get rid of that had turned to double pneumonia. On December 19, 2011, we were told that what she had was a very rare type of leukemia called T cell PLL. We were shocked beyond measure. After immediately turning to the WWW to read about this crazy diagnosis, we were all in awe!! How could something that began as a cough end up being a death sentence. My sister decided she would fight this monster with everything in her and fight she did. She spent about a month in Little Rock at the cancer research hospital receiving CamPath treatments then was sent home to Rogers, Arkansas. She had a few good days and fought the fight with everything in her. After receiving some kind of treatment or procedure almost daily, outpatient and inpatient, she was sent to Barnes Jewish in St. Louis. CamPath treatments were no longer working, so a new chemo was introduced called CHOP-R. On April 19th, one day after my sister’s 45th birthday and four months after the diagnosis, she transitioned into eternity. She said she would never give up, but when the cancer went to her spinal fluid, thus affecting her brain, she had nothing left to fight with and her time on earth came to an end. I hate this disease. It has been almost six weeks and I miss my sister like crazy.

Comment from Lori
Time December 11, 2012 at 3:25 pm

My mother was just diagnosed with this disease in the last week. She is only 57 years old. I very much appreciate you writing your story, I will pray for everyone with this disease, please pray for us too.

Comment from Mary Ann
Time January 30, 2014 at 1:55 am

I so enjoyed your e-book on T PLL. I have recently been going through a 15 week Cam Path treatment to be followed with a stem cell transplant. It is a long and trying period but I am feeling positive for the most part. Thank you for sharing your journey. Hope you are well

Comment from Endubya
Time October 28, 2014 at 11:33 pm

My father has been receiving campath treatments for his T-PLL for two weeks now. So far so fairly good. As Dr. Dearden of Royal Marsden reports in her excellent guide, campath is generally “well-tolerated.” This characterization is, of course, relative. Relative to the certain and generally rapid outcome without campath, ie, “non-life,” campath seems easier to tolerate. We’re hoping for a reasonable period of remission after the expected twelve weeks of nine hours per week of treatment. Otherwise, the cost-benefit ratio seems really high. T-PLL sucks.

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