Comments for Diary of an Illness http://diaryofanillness.com A Cancer Nurse Battles a Rare Leukemia Thu, 01 Dec 2011 19:50:27 -0500 http://wordpress.org/?v=2.9.2 hourly 1 Comment on 06 – Tender Mercies by admin http://diaryofanillness.com/6-tender-mercies/comment-page-1/#comment-1557 admin Thu, 01 Dec 2011 19:50:27 +0000 http://diaryofanillness.com/?page_id=50#comment-1557 Sorry for the late reply. I have not been checking this site lately. Please feel free to contact me if you have any questions or concerns. beingcancer@att.net or 317-283-1989 Take care, Dennis Sorry for the late reply. I have not been checking this site lately. Please feel free to contact me if you have any questions or concerns. beingcancer@att.net or 317-283-1989
Take care, Dennis

]]> Comment on Under Construction by admin http://diaryofanillness.com/under-construction/comment-page-1/#comment-1556 admin Thu, 01 Dec 2011 19:49:10 +0000 http://diaryofanillness.com/?page_id=35#comment-1556 Sorry for the late reply. I haven't been checking this site very often. Please feel free to contact me if you have any questions or concerns. beingcancer@att.net or 317-283-1989 Sorry for the late reply. I haven’t been checking this site very often. Please feel free to contact me if you have any questions or concerns. beingcancer@att.net or 317-283-1989

]]> Comment on Under Construction by Ingrid http://diaryofanillness.com/under-construction/comment-page-1/#comment-1396 Ingrid Mon, 31 Oct 2011 09:45:13 +0000 http://diaryofanillness.com/?page_id=35#comment-1396 My Dad has just finished his Campath treatment this week and having read your wonderful (and very helpful) blog at the beginning of his treatment, I was wondering if you are hoping to publish the chapters on relapse and transplant? Thank you for taking the time during such a difficult situation, to write so honestly and in such a helpful way for those who are following in your and your family's footsteps. My Dad has just finished his Campath treatment this week and having read your wonderful (and very helpful) blog at the beginning of his treatment, I was wondering if you are hoping to publish the chapters on relapse and transplant? Thank you for taking the time during such a difficult situation, to write so honestly and in such a helpful way for those who are following in your and your family’s footsteps.

]]> Comment on 06 – Tender Mercies by Mark http://diaryofanillness.com/6-tender-mercies/comment-page-1/#comment-1212 Mark Wed, 07 Sep 2011 17:35:45 +0000 http://diaryofanillness.com/?page_id=50#comment-1212 I have just been diagnosed with T-PLL. I see another oncologist next week. I assume he will want to start CamPath ASAP. Just now starting to tell co-workers, just a few now, but more when I will be out on 'sick leave'. I am both encouraged and hopeful of my own outcome. Please pray for me...I tell everyone to do that more than anything. I will also pray for you and keep your story in my heart as I go through my treatment and recovery. Yes, recovery because I know that I can do this. I have to be around to spoil my nearly 1 year old grandson and see him have kids! I have just been diagnosed with T-PLL. I see another oncologist next week. I assume he will want to start CamPath ASAP. Just now starting to tell co-workers, just a few now, but more when I will be out on ’sick leave’. I am both encouraged and hopeful of my own outcome. Please pray for me…I tell everyone to do that more than anything. I will also pray for you and keep your story in my heart as I go through my treatment and recovery. Yes, recovery because I know that I can do this. I have to be around to spoil my nearly 1 year old grandson and see him have kids!

]]> Comment on ~ About the Author by Kurt Faulkner http://diaryofanillness.com/about/comment-page-1/#comment-652 Kurt Faulkner Fri, 01 Apr 2011 15:46:07 +0000 http://diaryofanillness.com/?page_id=2#comment-652 Dennis, I was just diagnosed with T-PLL on March 25, 2011, and began my Campath treatments this week. I graduate to the 30mg dosage this afternoon. I am near 50, married for 24 years to my wonderful wife. I have one son and daughter. We all live in the Indianapolis area. Life has been a wonderfl journey for me. I am now being treated at St. Vincents. Would you be open to a phone call or visit sometime soon? I know your schedule must be hectic, but I would appreciate few miniutes of your time to speak with a T-PLL survivor and further gain your insight. I had not heard of T-PLL before last week and now find myself wanting to know all I can in order to make the right choices and overcome. Thanks for your consideration, Kurt Faulkner Zionsville, IN Dennis,

I was just diagnosed with T-PLL on March 25, 2011, and began my Campath treatments this week. I graduate to the 30mg dosage this afternoon. I am near 50, married for 24 years to my wonderful wife. I have one son and daughter. We all live in the Indianapolis area. Life has been a wonderfl journey for me.

I am now being treated at St. Vincents. Would you be open to a phone call or visit sometime soon? I know your schedule must be hectic, but I would appreciate few miniutes of your time to speak with a T-PLL survivor and further gain your insight. I had not heard of T-PLL before last week and now find myself wanting to know all I can in order to make the right choices and overcome.

Thanks for your consideration,

Kurt Faulkner
Zionsville, IN

]]> Comment on 09 – Starting Treatment by Lui Gabriel http://diaryofanillness.com/9-starting-treatment/comment-page-1/#comment-21 Lui Gabriel Mon, 13 Sep 2010 20:40:07 +0000 http://diaryofanillness.com/?page_id=57#comment-21 Dennis/Tish, Hello! I just finished my first cycle of Campath. I should have read your book before the treatment to prepare me for the shakes! They were very scary. I am tolerating the meds very much better now. I would like to get a copy of your Teaching sheet on the disease and campath if that is possible. The 4 month to 54 month prognosis you mention also scares me. Is stem cell transplantation inevitable? How are you doing now? Thank you. Dennis/Tish,
Hello! I just finished my first cycle of Campath. I should have read your book before the treatment to prepare me for the shakes! They were very scary. I am tolerating the meds very much better now. I would like to get a copy of your Teaching sheet on the disease and campath if that is possible. The 4 month to 54 month prognosis you mention also scares me. Is stem cell transplantation inevitable?
How are you doing now?
Thank you.

]]> Comment on Under Construction by claire peterson http://diaryofanillness.com/under-construction/comment-page-1/#comment-16 claire peterson Wed, 09 Jun 2010 23:20:03 +0000 http://diaryofanillness.com/?page_id=35#comment-16 Hi Deborah, my husband and best friend was diagnoised on March 22 with t-cell Prolymphocytic leukemia. Like youself, I'm terrified. He is presently doing well with the Campath without reactions, but that's today, I'm afraid of tomorow. I'll keep you with my daily prayers. Hi Deborah, my husband and best friend was diagnoised on March 22 with t-cell Prolymphocytic leukemia. Like youself, I’m terrified. He is presently doing well with the Campath without reactions, but that’s today, I’m afraid of tomorow. I’ll keep you with my daily prayers.

]]> Comment on Under Construction by Deborah Lopresti http://diaryofanillness.com/under-construction/comment-page-1/#comment-14 Deborah Lopresti Tue, 27 Apr 2010 04:26:07 +0000 http://diaryofanillness.com/?page_id=35#comment-14 My husband finished treatment for T-PLL before Easter. He was treated with Campath for a period of 13 weeks and his bloodwork has been looking great for almost two months now. We are supposed to have our next appointment with his oncologist on May 17 but on April 23rd he started with a fever. The fever has been going up and down for 4 days now and we have an appointment with the oncologist tomorrow. I am petrified that something is horribly wrong. Your journals are inspiring. I thank you for them. This cancer is so rare and I am so afraid. My husband finished treatment for T-PLL before Easter. He was treated with Campath for a period of 13 weeks and his bloodwork has been looking great for almost two months now. We are supposed to have our next appointment with his oncologist on May 17 but on April 23rd he started with a fever. The fever has been going up and down for 4 days now and we have an appointment with the oncologist tomorrow. I am petrified that something is horribly wrong. Your journals are inspiring. I thank you for them. This cancer is so rare and I am so afraid.

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